Tag Archives: politics

Dear Representative: Save the Affordable Care Act

Dear Representative Cummings,

I am a legal permanent resident of these United States, currently living in Maryland’s 7th district, represented by your voice in Congress. I am writing to you today to ask you to keep up the fight to preserve the protections contained in the Affordable Care Act, and to work hard to convince your Republican colleagues to reconsider their efforts to repeal the Act. My son’s life may depend on it.

Liam is two and a half years old. He loves to play his ukulele and harmonica, and his favorite planet is Jupiter. He insists on wearing bow ties, he likes to help me make my coffee in the morning, and he tells me every day that he loves me “really much.” He is the greatest joy of my life. Born with a genetic condition called Neurofibromatosis (NF), he has already endured five sedated MRI scans, to watch carefully for growth of the tumors that already threaten his optic nerves and other regions deep in his brain. Every three months, we bring him to the hospital and hold him as they apply the anesthesia mask to his face. He holds his beloved Elmo, and we rock him and sing to him, but he always cries. He cries because he doesn’t understand. We cry because we do.

Despite all of this, he is a thriving and joyful little boy, loving and learning and testing his limits like every other toddler. He sees an ophthalmologist and a neurologist regularly, and he goes to music class on Sundays. He sees a physical therapist and an orthotist for the low muscle tone that come with his condition, and he has soccer once a week.

His extensive medical care is just a part of our life, and we adapt. We are grateful that he hasn’t yet needed any surgeries or serious intervention that would require hospitalization. Other children with NF aren’t so lucky. A day may come when chemotherapy will be necessary to stop Liam’s tumors from taking his vision. Serious and complex surgeries may be needed in the future, to remove painful nerve tumors growing along his spine. And one day, he will grow up and grow out of his dependence on us, leaving him to find coverage for himself. This is why we can’t allow the Affordable Care Act to be repealed.

If lifetime caps on benefits are reinstated, chemotherapy or surgery could have us reaching those caps within a matter of months. If pre-existing conditions clauses are allowed, my son may not be able to find affordable health insurance for himself when he grows up, because of a spontaneous mutation that occurred before he was born. And if anything happens to us to affect our ability to work, we need better options than high-risk exchanges or bankruptcy. Yes, we hope to maintain access to employer-subsidized health insurance, but without protections in place for us and our family, we’re one layoff away from a disaster. That’s a lot of stress to carry, when we already carry so much.

I came to the United States from a country where healthcare is understood to be a basic necessity, and is available to all through the taxes that residents pay into their government. When I moved to Maryland in 2007, I was consumed by anxiety. I had a good job with good health benefits, but what if I were to get sick enough that I could no longer work? What if I lost my job and it took me several months, or years, to find another? It’s common knowledge across the globe that Americans lose their homes when they get cancer, and carry crushing medical debt if their children have special medical needs. The passing of the Affordable Care Act, and the protections it contained, made me feel much safer here. America could be humane about health care after all.

That’s why I can’t understand why so many Republicans want to erase that progress and put stress back on American families and individuals. Surely they also have families of their own. Surely their constituents include families like mine, children like Liam. Why do they want children like my son to be left without access to reasonable health insurance once he’s out on his own? Why do they want to cap how much health care any one person is entitled to? Why do they want us to live in terror of losing our jobs or getting sick? Why do they think that families with sick children need the extra strain on top of what they’re already living? Why do they ignore the voices of the people they represent, and feel that they know better?

Please, sir, bring your Republican colleagues my story. Bring them all of our stories. Please appeal to their humanity and encourage them to do what is best for the people who are depending on them. Liam is counting on you. Our family needs the ACA “really much.”

Sincerely,

Me.




Bendy Straws

Every Little Bit

Every little bit counts. I have to believe that.

Even though my carefully-written letters to my political representatives go unanswered. Even though those representatives are already doing all the things I’d be asking them to, and supporting all the resistance that makes sense. It feels odd to write to them, knowing that their minds are already made up and they’re already on my side in the fight. But I have to believe that my calls and letters end up tallied on a spreadsheet somewhere and make a row or column just a little more impressive, make someone nod to themselves and say yes, yes I am doing right by these people.

I’m not changing votes. I’m not going to be the one who saves the ACA or finally gets the president’s tax returns into the light. I can’t give Trans kids the protection they need and I can’t keep states from shredding apart abortion rights. I don’t have the power to overturn immigration bans. The people whose minds need changing on these issues aren’t my representatives and aren’t listening to me.

But I did get an unexpected response this week from a local Islamic school, thanking me for my letter and expressing comfort in the knowledge that so many in the community reached out to them.

I’ve been reading Washington Post articles without the pressure of a paywall, and feeling good that a journalist is getting paid for their hard work today. Maybe one more stone will be turned, and one more important article will be written.

I received an email from my professional organization, thanking me for my engagement and informing me that they have written to the president and issued a public statement condemning the immigration ban.

Someone saw the Black Lives Matter pin on my coat, and asked where they could get one.

Maybe it’s okay that our actions are small and feel insignificant. Maybe it’s okay that all we have are straws. If we can get together and concentrate our efforts on the right camels, maybe the straws will be enough, in the end.

I have to believe that every little bit helps.

Get out there and find a camel to put your straw on.




This Month In Resistance And Accountability

I’m writing this today because I need to keep track of how I’m resisting the efforts of this administration to undo the hard work that’s improved health care and the economy and equal rights for so many. It’s not enough to talk about the fight: we need resistance and accountability. I need to make lists of my efforts so I’m not just telling myself that I’m fighting for equality and for access to health care and public schools and clean water and other basic human necessities. Talk is cheap. What have I done to back up my intentions?

Accountability

I have called or emailed (often both!) my Senators and my Congressman daily. They have already made their disagreement with Trump’s agenda very clear, often putting out public statements against his nominees and his hasty and bigoted Executive Orders before I’ve even had a chance to ask them to speak out. I call anyway, to thank them and to share stories about why their votes matter to me and my family.

I contacted my professional organization, asking them to make a public statement condemning the immigration ban.

I have been sharing the This Week in Autocracy spreadsheet on Facebook, hoping that others can use it to investigate news stories and find new ways they can safely protest and resist this administration.

I’ve followed more voices from minority communities on Twitter, so I can try and learn to listen, and to understand how I am helping – or hurting – with the choices I make.

I wrote a dozen letters to local Islamic centers and mosques, telling them that they have friends here who will fight for their rights and freedoms.

I signed up to volunteer for Lawyers for Good Government, who have been fighting the immigration ban and providing legal counsel to those who were detained in airports across the country when the ban was enacted. I haven’t been contacted yet, but at least I’m on their list if they need me.

I contacted my county executive, asking him to reconsider his veto of a local bill which would have made my area a “sanctuary” county where police couldn’t harass or detain people on suspicion of illegal immigration status. I also contacted my representative on the county council and thanked her for voting for the bill even though she knew it couldn’t pass the veto.

I bought Organizing for Social Change after writing to my local library asking that they purchase copies for their collection. And I’ve been reading it, and I’m examining my budget to try and make it possible for me to attend a related workshop in Baltimore next fall. It’s a longshot, especially trying to collect enough vacation time for the week-long event, but you never know.

Am I doing enough? Oh, of course not. I should be attending local meetings, doing more research into local and state politics, and planning to attend rallies and protests. I should be donating more money to groups doing the hard work. But I’m human, and there are only so many hours in a day and only so much energy in my body and money in my wallet. I sometimes need to remind myself that even little things count. I am small, and my actions are only the tiniest of ripples in this ocean. But ripples can make waves. We are many, and our actions are more powerful together.

Tell me: what are you doing to resist? How are you finding ways to fit activism into your life without completely sacrificing your mental and physical health?




Activism For Beginners

Millions of people took part in marches in cities across the country this weekend, their voices raised for equality, justice, and kindness. Among their number, and watching at home, were thousands of brand new activists just waking up to the reality we’re in and the power we hold to change it.

Whether you were able to attend or not, I hope that stories about the event have awakened the activist within you. Because this is only the beginning. This march was a message to those in power: we’re important, we’re many, we’re watching, and you’re not going to get away with evil. How do we take this spirit and push forward with it to create change? Because marching isn’t enough. We’ve got a long road ahead as this administration works to sell outright lies to us while dismantling our rights.

There are so many activists out there who know a lot more than me, and who are already writing better posts than this one about what to do next. I’m new to this myself, and have so very much to learn*. But I’m hoping that maybe hearing some of this from a friend might make it less intimidating.

Here are some steps that we all need to take in the next few weeks. And once we’ve stepped those steps, we need to step’ em again. And again and again. Then more steps, and bigger steps, until we see results. And then? Keep going.

Activism for Beginners: Baby Steps

Get Familiar With Your Bias and Privilege

We’re all biased. It’s the way the brain gets wired through years of experience with the world, cultural expectations, exchanges with others in the community and outside of it, and consumption of media in all its forms. Everyone, to some degree, holds preconceived notions in their heads about groups of people, even if they aren’t consciously aware of it. You can test your implicit bias through Project Implicit, even though there’s a good chance you’ll be uncomfortable with the results. I know I was uncomfortable with mine. The important thing is what you choose to do with that discomfort. It’s easy to want to dismiss it, saying there’s no way it can be accurate, because you’re not racist or ableist. You’re a good person! Yes, you probably are. You probably try to do everything right and treat people fairly, but it’s important to know the ways in which your brain may be making decisions for you without you even being aware of them. Look at your results. Know where you may need to be exerting a little more conscious control over situations and choices. Just be more aware.

Once you’ve had some time to sit with your biases and pledge to work against them, look at your privilege. Privilege doesn’t mean you’re rich and happy and have never had it tough. It just means that there are some things that you have never had to experience, simply because of the different circumstances of your existence. Acknowledging that other people’s lives and experiences can be very different than yours is important: it’s a way to train yourself out of getting defensive when someone calls you out. The fact is, if you’re white, you’ve had it easier than every other group out there. You owe them the space to tell their stories, and you owe them some difficult homework in understanding and working towards equality.

Get Educated

Open up your eyes and mind to some new perspectives by following some activists on Twitter or Facebook, or subscribe to their blogs or the publications that they contribute to. This is the easiest possible doorway to activism. Just read. Read the words of Black women. Read the words of Indigenous women. Read the words of Trans folks. Read the words of disabled folks. Read as much as you can from people whose lives are different from yours, and who have more to lose in the upcoming political horror show. Listen, learn, and try hard to understand how your actions may need to change in order to stand behind these people in a meaningful way.

And I do mean listen. Don’t interrupt, don’t get defensive, don’t make the conversation about you, and don’t ask for citations to back up their words. If they bring up historical facts you don’t recognize, make a note to go home and put in the work researching and understanding where they’re coming from. If they make you feel uncomfortable, examine those feelings and try to get to the root of them so you can work on being a better and more empathetic person.

While you’re reading, why not support good journalism by subscribing or donating to sites that are doing a good job out there getting actual news to the people? Fight the clickbait economy and support them with your dollars. I’ve subscribed to Mother Jones, the Washington Post, and Teen Vogue (no, seriously), and I’ve donated to the Guardian. If we want good journalism, we need to make it possible for these places to pay good journalists.

Teen Vogue website

Yes, this is a screenshot of Teen Vogue’s site on Saturday.

Get Political

Yes, start calling your representatives in the federal government about all the things going on that you disagree with. Tell them how you’d prefer that they vote on matters that are important to you. Then, afterwards, call to either thank them for voting that way or tell them you’re disappointed that they didn’t. But this isn’t just about the federal government. There are state governments and local governments that speak for you, too. Do you know who represents you when everyone meets for votes in your state capital? Who is on your local board of education? Who’s your mayor? What do they stand for? What important matters are coming up for votes? These people all have offices and phones, and they need to hear your voice.

Do your research and figure out what’s going on closer to home, and then get involved in whatever ways you can, from letters to the editor to attending public meetings to running for office yourself, if you’re qualified (and brave).

Get Involved

What causes matter the most to you right now? How can you help them? Whether it’s time or money, see what you might be able to donate to organizations that are doing some of the hardest work in this fight. There are big ones, like ACLU Planned Parenthood, and Campaign Zero, but don’t forget to act locally, too. Food banks, domestic violence shelters, job centers, children’s groups: find them, and ask them how you can be involved.

Even everyday interactions can make a difference. With so much hate swirling around, and actual Nazis among those in charge of the country, plenty of people have reason to worry for their safety and well-being. Smile at the veiled woman on the bus. Tell the Hispanic barista you like her earrings. Tip the Black waitress a little extra. Speak up when you hear someone say something that is not okay. Fight the normalization of hate speech. Normalize kindness and tolerance. Model good behavior and hope others catch on.

Get Prioritized

Do you need more help prioritizing your energies while your outrage meter keeps overloading with every fresh news story? I’m right there with you. I highly recommend signing up for regular emails from Indivisible and re:act, which contain simple weekly action items, including telephone scripts you can use when calling your representatives. The group behind the Women’s March is rolling out an action plan. Many other national groups, like Planned Parenthood, Moms Demand Action, and the ACLU are also giving out useful information about ways to participate. Sign up for their mailing lists, and follow them on Facebook and Twitter to stay up to date on what they need you to do.

It’s so easy to feel overwhelmed. The list of horrible things we need to fight against keeps growing, and no one person can possibly manage to work against all of it, every day. Rage burnout is a real thing. But every little bit does help, and it’s okay to choose only a few points for your action list. I make a list every weekend, using the mailing lists above as a guide to urgent priorities like hearings or votes. I have a regular slot in my calendar for calling my elected officials over my lunch break.

Get Loud

There is power in numbers – just look at how many turned out for the marches this weekend, and how much it shook the administration. We need to keep people engaged and involved so that the movement continues. Share your hard work in ways that might inspire others, even if it’s just on Facebook where your conservative aunties might see it. See if a coworker wants to volunteer with you. Write letters to the editors in your local papers. Forward links to activist mailing lists to friends who may want to do more. If you’re more extroverted and feel up for it, maybe get a local discussion group together in your neighborhood so you can plan to act as a group and reach more people. Go to town hall meetings and ask your representative important questions, so their answers will be recorded by local journalists for all to see or read.

Beginner activism is still activism. It still counts and can make a difference. Don’t let your inexperience stop you from trying, failing, learning, and trying again. Listen when you’re given feedback from folks who have been fighting this fight longer than you. Share what you learn. Most of all, keep going. Even if we can create change, we need to sustain it, as this election has shown us all too well.

 

*I’m still learning, and I understand that I’m unlikely to get any of this completely right on the first try. Please, let me know if I’m missing important things here, and I’ll do my best to edit this post in response.